Thames Leisure boat hire are proud supporters of Demelza Hospice Care for Children and we’re pleased to announce two new events we will be hosting for them during 2010. The first will be a cruise for the children, their families and carers to provide the children with some afternoon fun, as well as recognising all the hard work provided by the nursing teams.
The other event will be a fundraiser to try to raise money and awareness for this all important charity. We will be updating this blog with all the key dates and information for their forthcoming events and hope that you will join us in supporting them in 2010.

(registered charity no: 1039651)
Demelza Hospice Care for Children was set up by Derek and Jennifer Phillips following the death of their daughter, Demelza from a brain tumour at the age of 24. Demelza worked at Acorn’s children’s hospice in Birmingham and the couple realised the South East was in dire need of a similar facility.
The charity offers: short residential breaks and day care at Demelza Kent and Demelza South East London and community care through the hospice at home care nursing team, based in East Sussex. The Demelza Community team provides a hospice at home service for children in East Sussex and South West Kent with life-threatening and life-limiting illness and their families. Specialist pediatric nurses go directly into the family home to provide care, crisis intervention, an on-call service and respite.
Demelza Community also has a personal story behind its inception, it began as James House following the death of James Gooch aged 11 years from a rare and incurable genetic disorder. The merger with Demelza in 2004 saw the name change to Demelza James and it is now known as Demelza Community. Demelza Kent is an eight-bedded hospice in Sittingbourne, Kent, providing respite, symptom control, end-of-life care and bereavement support. Life-limited children and their families benefit from a wide range of facilities which include a multi-sensory room, soft play area, a jacuzzi, and the inclusion zone for young adults.
At the end of the child’s illness, we offer a comprehensive service of support using a bereavement suite – known as the Hop Garden – which enables a family to let go and say goodbye at their own pace. We share our expertise in childhood bereavement with organisations such as the Police and charity ‘CRUSE’.
Our new hospice in Eltham, South East London was officially opened in June by Demelza Vice Presidents and Olympic champions Jayne Torvill and Robin Cousins. The six bedded unit offers a range of services including short breaks and accommodation for families, day care, end of life care and bereavement services. Demelza gets little financial support from the Government so relies heavily on the support of the community in terms of fundraising and also volunteering.
Over 900 volunteers help out in all areas of the charity from cooking and gardening to housekeeping. We also run an advanced volunteering programme where volunteers work within the care department. Our 12 charity shops across the area also rely heavily on volunteer staff members. We are excited that this figure will soon go up to 13 with the opening of a new shop in Battle.
If you’re feeling lucky and want a different way to support Demelza, we have a weekly lottery. For just £1 a week you have a chance to win a jackpot of £1,000. And if you had any doubt what a difference Demelza’s work makes to our families listen to the words of Marie Baker from Eastbourne, who uses the community nursing service for her daughter, Aimee. Aimee, who is four, has a rare condition called Dravet Syndrome which causes her to have uncontrollable, and potentially fatal fits.
Mum, Marie says: “Demelza has been a lifeline for our family since Aimee became ill. We can leave Aimee with a pediatric nurse confident that she is being well looked after and that appropriate treatment will be undertaken in an emergency. “We are also secure in the knowledge that when Aimee is with one of her Demelza nurses she is having fun and doing all those things that other children experience.
“We have support at the end of the phone whenever we need, not just for Aimee but for our other daughter, Katie. Demelza allows us to enjoy Aimee and cherish every moment that we have with her”.
For more information about Demelza call (01795) 845288 or visist www.demelza.org.uk